Today was moving day again; this time to a quilter friend. I am hugely impressed that I’ve had so many offers of apartments. I like my friend’s place. It’s not as fancy as the last apartment, but it looks like someplace I’d live in. I expect to be very comfortable. I don’t know yet whether this is for three nights or four. In any event, I’m hoping to return to Pittsburgh on Tuesday.
Robin seems to be doing very well. We actually went to a movie yesterday. She had a Dr.’s appt this morning and I’m waiting for the report.
Today I am a nomad
Robin seems to be recovering nicely. She will have another doctor’s visit this afternoon. Renee returned from Florida yesterday and I had to move. This time I’m staying in Rose’s apartment (she just went to Florida) and it’s closer. I’m getting a little disoriented about where I am and what day it is, but it’s fun seeing all the different apartments. This one is also an art deco building with doorman. When I arrived on Monday to see Rose and pick up the key I found out the doorman was able to open the elevator door and push the button for the correct floor from his vantage point at the door. I don’t know what would happen if I pushed another button. All this is a bit spooky, but it does remove the need for an elevator man.
The apartment is lovely: very comfortable and completely modernized, like something built in 1995 (not later because there are no computer controlled things). I’m impressed with the electricity; lots of outlets and many switches that turn on wall outlets allowing for easy control of lamps. You can tell something about my priorities. Kitchen is also beautiful. That used to be one of my priorities; since I no longer cook I don’t think about it very much.
I will probably be moving one more time before we return to Pittsburgh, so you will get to hear about one more apartment.
Sunday update
Thursday, Friday and Saturday we waited and hoped. Immediately after the surgery the doctor gave her 50/50 odds of keeping the graft. Yesterday it was 90/10. Today she is being released from the hospital. We’re not in the clear yet. It took six days for the first problem to show up, but we are guardedly optimistic.
The doctor told her to be more cautious about physical activity. He doesn’t think the long walks caused the problem originally, but they might not be so good now. Since they have to continue checking the graft she is not quite so buttoned up as before. The apartment will be boring, although not as bad as the hospital, and she has plenty of toys–DVD’s, iPad, Kindle, iPhone and laptop.
Moving slow today
Wednesday morning Steve and Renee left NYC and I moved from my west side fantasy apartment to Renee’s east side New York apartment. Robin and I west out for a long walk in Carl Schurz Park along the East River. Everything seemed fine, but when we returned she said she thought there was something wrong with her right breast. We went to the doctor’s office where they diagnosed a hematoma, squeezed it out and sent pictures to Dr. A., who was in surgery all day. By six that evening she had heard from the doctor and we went back to the hospital. She was taken to the OR at 8:30, her reconstruction was opened and blood clots were removed from her newly attached veins in another four and a half hour surgery.
I was frantic. Up front the doctor said it would be about two hours. When we got to four my imagination was running rampant. Finally, another half hour and I was told she would be in the recovery room for hours. I got back to the apartment about 2am. I was ready to return to the hospital at 8, but Steve called. He had heard from her; she was still in the RR on clear liquids, so I could forget the food I had carefully packed, and they were keeping her on her back. No need for me to rush.
It was raining buckets; our spring in January was over so I went back to sleep for half an hour and then the sun came out. When I got back to the hospital they were trying to decided whether to go in again and remove the graft. As of this morning they have done nothing more and are hoping the veins will function. Steve returned yesterday afternoon and went to the hospital early this morning. It’s a good thing I can live with uncertainty; I’d be nuts otherwise.
I’m off to the hospital now.
Monday report
Healing is progressing very well. Robin is now at Renee’s apartment. She still has the drains, but they will probably be removed on Thursday when she goes to her doctor appointments. She’s been out walking, enjoying the wonderful January in New York weather. I’ve been going from the west side to the east side with some foraging in between: today was Dean & Delucca for a special yogurt and a walnut bread. It’s amazing, there are two places in NYC to get walnut bread.
The building where I am staying has elevator men, giving me something new to think about as I come and go. I recall stories about elevator men, the most recent being about the man who lived alone and had no family who, on Christmas day, worked on the sympathies of all the building occupants and wound up with several Christmas dinners, lots of drinks, presents and toys for his fantasy children, most of which he gave to one of the neighbors where he lived. I don’t know what happens here, where there is a profusion of elevator and doormen, but it’s fun to think about.
Steve and Renee will both leave on Wednesday and I will move to the east side for the remainder of our stay. I don’t expect Robin will need much help, but I won’t leave her alone. She is anticipating problems getting back to Pittsburgh because she has so much stuff. I think it will be all right. We can get help and this old lady is still fairly strong, at least enough to briefly lift even heavy bags.
Thanks again for all the good wishes. They make us feel much loved.
Another good report
Yesterday may have been Robin’s last day in the hospital. She was supposed to be up and walking Friday, the day after surgery. They sat her up in the chair and she passed out, leaving her worried all day she wouldn’t recover as quickly as she had hoped. She was walking when I arrived and continued walking or sitting in the chair all day. We are hoping today will be even better and we can take her to Renee’s apartment where she will recuperate for the next two weeks.
I’m writing this in bed in my friend’s apartment and I’m not online. She has a computer but doesn’t know much about it. I can only get online by taking the USB cord from her machine and plugging it into mine. I’ll do it later. Last evening we went to a concert at the Metropolitan Museum—the Pacifica Quartet, two violins, one viola, one cello. It was lovely, but my tinnitus gets stimulated by the violins and it makes me unhappy. These days I prefer piano music. It doesn’t seem to have the same effect.
The hospital has been very good. Robin and Steve both feel she is getting excellent care. She was in a four bed intensive care unit with constant nursing surveillance until afternoon when they moved her to a regular double room across from the nursing station.
On the day of the surgery, and for many days before, I felt like I had a lump in my chest. As the surgery progressed and we received reports from the operating room, the lump began to lessen. When I saw her again that evening most of it went away. Today I am completely relieved. I know there is much hard work ahead of us, but it’s all doable. Knowing Robin I’m sure she will recover quickly. Unlike her mother she loves exercise and can’t wait to start running again.
You can tell I am relieved by this next story about one of my pet peeves. Going to the hospital I take the subway then transfer to a bus. There is a new bus option: select buses, supposedly faster because of a dedicated bus only lane and they don’t make every stop. Also, you pay before boarding and don’t even show the receipt unless you are asked to do so by an inspector. The fine for noncompliance is $150. At each bus stop there are two machines for use with a transit card and one for cash. The express buses are not new. The city always had a system of limited and local buses. They seem to have extended it to more routes, but only the fare purchase system is new. As usual, I am the skeptic. At least on 34th st. I certainly don’t see the efficacy. The bus only lane is at the curb and there is always a parked truck or taxi blocking the bus. When people get on and try to pay they are directed off the bus and told to use the machines. Mostly they will have to wait for the next bus. I haven’t encountered any inspectors and I have no idea how much money the city is losing. But the thing that gets me most is that you must still carry lots of quarters if you don’t have a transit card: neither these fare boxes nor the ones on the regular buses will accept dollar bills for a fare now at $2.25. I’ve never understood this dedication to quarters, nine of them now.
So far everything good
Surgery is finished. Reconstruction is finished. Tonight is critical: if nothing happens to restrict blood flow to the reconstruction it should all be easy, or at least less worrisome. Amazing the things they can do these days. Thank you again for all of your prayers and good wishes.
I am staying in New York with a friend of some thirty years. She is the mother of one of Robin’s college roommates. The girls spent a summer backpacking through Europe and Phyllis and I became friends. Over the years we’ve spent a lot of time taking photographs together. Phyllis is still working at it while I have downgraded to snapshots. But we both enjoy wandering around New York and visiting museums. Phyllis lives in a huge apartment in one of those great old art deco buildings on the upper West Side. I’m enjoying the space and the luxury of it all when I’m not at the hospital.
Thank you for all of your good wishes
I’m sitting in the hospital waiting room. Steve said I shouldn’t come until 10:30, when the doctor anticipated the first part would be finished. But I couldn’t sleep and I’ve actually lost my appetite. Never happens to me.
Robin wrote about what she is doing. You can find it here.
New year, old issues
We’ve been trying not to think about this week; now it’s finally here. Robin and Steve go to New York today. On Wednesday she’s scheduled for a few last tests; Thursday she will have the bilateral mastectomy and reconstruction in a ten hour operation. I’m going to New York on Wednesday and will stay with her for as long as she remains in the city. If you don’t remember the why of all this, you can read it here. For more info about the BRCA genes and mutations, just Google.
I don’t intend to write about Robin. It’s her story if she wants to tell it, I will write about my role and my reactions. I find it almost unbearable when she has to have something done to her. It’s much easier for me to deal with bodily invasions of my own, than watching her undergo anything. There was a bad appendicitis when she was ten, then awful oral surgery–all very difficult. I just keep my face under control. So I have been unhappy all last month and will continue at least until Thursday night when the surgery part will be over.
I’m almost all packed, paid all my bills, or argued about a couple of them. Nothing like calling the hospital and asking what the charge is all about. Stopped the mail and sent my orchid to a good home (it was given to me last week) and arranged with a neighbor for a ride to the bus tomorrow. I’ll try to keep blogging.
Welcome to my new neighborhood
So here is the book; the one that didn’t get to the party last weekend. It is a box with three booklets inside.

This is the third box I’ve made. Again, I’m not entirely happy with my craftsmanship, and may try one more time. The box is approximately 3×4.5 inches. Note the lip around the top and bottom of the box.
I think it adds an elegant touch and probably adds strength. It is very difficult to create; two opposing folds 1/8 inch apart. The media distribution box named Burning Box Imager is now a box, again. Inside are three different copies of the Burning Box Imager, my virtual newspaper.
These papers are created from one sheet each. You can get directions here. I used pictures I took in Philadelphia at the Magic Garden, which is near the burned out media box; they remain linked in my mind.
Here you can see the little booklets inside the box. Each booklet has the title on it.

